Making research accessible

accessiblity

Image courtesy of Jil Wright, Flickr.com

I can’t quite believe how much time has flown by since my last blog post. I now have a backlog of blog posts that I want to share but I acknowledge that the winter months were barren, to say the least.

One of the issues that I have been grappling with recently is how to make research accessible. And I don’t mean just ‘easy-read’ accessible. How do we really get to the nitty-gritty of all our research-specific terminology and make it truly meaningful to people who don’t do research but might be interested in it. I had great fun with my PPI group last month unpicking some of jargon that I’ve been inflicting on them… but more of that soon. One of the other things that I promised my PPI group in return for their invaluable advice and insight on my project, is access to current research and innovation. I identified a paper concerning new and emerging AAC technology and summarised it for my PPI group. I also made a rough and ready video that they could watch as some of the group have limited literacy (https://youtu.be/sngSV5TZJpc). They were happy with my attempt so I thought I’d share it here so others might be able to access it too. Please get in  touch if you do share it, or get any feedback on it, or if you have any feedback on it. I’m also interested to find out how others have made research accessible to a non-specialist audience.

New and emerging access technologies for adults with complex communication needs and severe motor impairments: state of the science. Susan Koch Fager; Melanie Fried-Oken; Tom Jakobs and David Beukelman. Journal of Augmentative and Alternative Communication (2019). Published online.

The aim of this research paper is to describe some of the patient-centred research which is supporting the development of new technologies to help people who have communication difficulties.

 Patient-centred design, in this research paper, is described in terms of 4 stages:

  • early involvement of the AAC user in designing a new product
  • the development of prototypes (models of the new product)
  • Ongoing development and improvement of the product design
  • Evaluating the final product with reference to the person using it

The design of each of the new technology products was inspired by an individual, described in a case study. ‘Case study’ is a term used in research to describe an individual and their circumstances.

Movement sensing technology picks up the movements and activity of individuals wearing a device. For example, wearable fitness monitors can track the number of steps that people take each day and the types of activity that they carry out i.e. running, cycling, walking, swimming. Invotek Inc (https://www.invotek.org/) is a company which is using a similar type of technology to develop a switch to help people to access augmentative and alternative communication (AAC). Some people cannot control all of their movements. The technology described in this research paper aims to use movement sensors, like those found in activity watches, to tell the difference between controlled and uncontrolled movements. Only the controlled movements are detected and used to activate a switch.

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Image of the movement sensing switch

Brain-computer interface (BCI), as described in this paper, is a type of switch that detects electronic brain activity (brain waves) to activate switches. This technology may be of value to people who have limited or no control of body movements but who have good thinking and spelling abilities. BCI is currently used to help people spell out words. The person using a BCI would need to wear electrodes on their skull which detect brain activity. Letters may flash up on a screen in front of the individual using a BCI. When the target letter appears, it can be selected by thinking about selecting the target. The electrodes detect the brain activity and activate a switch to select the letter. BCI technology is not currently widely used outside of research studies. Research about BCI is exciting and promising but is unlikely to be usable by large numbers of people until it has been further developed.

BCI

Image of a person wearing the BCI electrodes cap

Multi-input strategies in this paper is, more specifically, using an eye-tracker alongside a switch to increase the speed of target selection. Some people can find using an eye-tracker difficult especially when trying to select small targets. Lighting, the position of the user and the condition of their eyes can all affect people’s ability to use an eye-tracker alone. A prototype (model) has been developed that allows people to access their AAC using more than one switch. The person described in this research paper used eye gaze to select the area of the screen that the target letter appeared in and then a switch to choose the letter.

eyegaze                               switches        

Images of an eye gaze system and a range of switches                                            

Supplemented speech recognition (SSR) is a computer software that can support unclear speech by suggesting words when someone with a communication difficulty cannot be understood. The person with the communication difficulty has to train the software so that it can learn to link their speech patterns to words. When a listener cannot understand what is being said, the speaker can speak into the software, type the initial letter of the word they are trying to say, and the software will predict what the target word could be. The speaker can then select the word they are trying to say from a list of options available on the software.

SSRunit

Image of the SSR unit

Supplementing access with partner input is done by using an app that both the AAC user and their conversation partner have access to. The SmartPredict app allows the conversation partner to make suggestions to the AAC user about what they might be trying to say. The AAC user will see these suggestions in their predictions list and be able to select or ignore them as they wish.

RERC

Image courtesy of RECR on AAC, Pennsylvania State University

“The goal of these new and emerging technologies is to increase the ability to access technology, reduce fatigue, and improve satisfaction with communication[…] Although the technologies described in this paper are promising, there is more work to do.” Page 9, paragraph 6

Four of the five case studies described in the paper are people who have acquired communication difficulties as adults.

 

 

 

 

 

 

 

 

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The Stars of the Show

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Image produced by Smizz: smizz.com

What happened to October? This post was intended for October but I seemed to have lost that month and found myself at the end of November, staring down the barrel of December without having written anything. October was AAC Awareness Month, a celebration of all things ‘alternative and augmentative communication’ – and therefore a perfect opportunity for me to champion the main players in my research project. I also held my fourth expert advisory group meeting in October (see also Asking the expertsEngaging the experts and Expert collaboration). If ever a reminder of the importance of this project or the complexity of the population who use AAC was needed, the group provided it. I have also started a second literature review, focusing on uncovering the ‘missing perspective’; discovering what the research already tells us about what is important to people who use communication aids. So in this post (albeit a month out), I wanted to revisit the challenges, intrigue and satisfaction of working in AAC.

If I learnt one thing during AAC awareness month, it is that there is a plethora of resources, charities, organisations and individuals supporting AAC (e.g. Ace Centre, Communication Matters and Call Scotland to name but a few in the UK). The over-riding message that I hear from people who rely on AAC however (from previous research, my expert group and clinical anecdote) is that they frequently feel under-supported and not well engaged in decision making. One of my Marvellous Experts puts this down to a disconnect between the perspectives of health care professionals and people who rely on AAC. He believes that health care professionals, specifically speech and language therapists, still predominantly practice guided by the ‘medical model’ i.e. identifying a deficit and fixing it. His preference is the ‘social model’ of disability which would promote enabling people to overcome barriers to inclusion by addressing the barriers themselves. He lives independently with support from a personal assistant (PA) and uses his AAC to enable him to manage his life, direct his PA as well as to communicate.

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Image courtesy of Ross Atkin: rossatkin.com

Another of my Marvellous Experts only started using AAC a few years ago (well into adulthood) but is now a ‘super-user’ – able to programme his computer-based AAC independently as well as support other people using the same communication software. Despite being proficient in using his AAC, he still frequently relies on his partner to interpret his non-AAC communication (a combination of vocalisation and gestures). He describes his AAC as “what’s in my head” but sometimes struggles to get out what he wants to say in a timely manner, to keep conversation flowing, so finds it quicker to use his partner. Again, he is fiercely independent and uses is AAC when out and about to communicate with people who don’t know him. He reports that his AAC has been a lifeline to opportunities that he couldn’t have imagined before he started using it.  Despite his high level of skill he would still like more training to use his AAC and reports that he hasn’t ever been asked to evaluate his AAC or provide feedback to the services supporting him.

Both the experts featured above have had communication difficulties for as long as they can remember. I have two Marvellous Experts who acquired communication difficulties as adults, have had a different experience of AAC and therefore bring a very different perspective to the group. One described AAC as representing a ‘loss’; when the time comes that he is required to rely on AAC, it will be because he can no longer speak clearly enough to make himself understood. The other discussed the challenges of trying to interrupt conversations using AAC rather than the vocalisations that most of us use to interject. Rather than using AAC to increase their independence, broaden horizons or open up new opportunities, for these experts AAC is a rather slow and clunky alternative to speech which is adopted somewhat reluctantly.

I also have some younger experts in the group for whom AAC is inextricably linked to their sense of identity. One in particular is slightly resentful of his AAC as he feels that it draws attention to him when he’s out in public. He doesn’t like using it with people who don’t know him as he doesn’t want to have to explain to people why he relies on it. The sense of identity and AAC has also come up in relation to the voices on AAC devices. Many people, including Britain’s Got Talent winner Lost Voice Guy , bemoan the lack of regional accents on AAC.

lost voice guy
Lee Ridley AKA ‘Lost Voice Guy’. 2018 winner of Britain’s Got Talent

I am currently looking at the research literature, again, to find out what is already known about the experience’s of people who rely on AAC.   I have been surprised at the amount of qualitative research that I have uncovered. I am yet to sift through all the results and identify the reports of greatest relevance to this project, but a superficial screen would suggest that user-perspectives have been a feature of the available evidence base for almost as long as we have been investigating AAC. One of the challenges of qualitative research is that the results aren’t generalisable; studies are usually used to develop a greater understanding of the essence of experience. I have learnt from my group that their experiences are wide, varied and as individual as they are. I am looking for themes within the existing literature that capture people’s experience of and values in relation to AAC. I will share these themes with my experts and with participants in the project to learn whether or not they resonate with personal experience.

I have described a few individual examples of people who rely on AAC, but is by no means representative of the population in general. One of the discussions that we had during my last group meeting was the need to look for similarities between the priorities and experiences of people who rely on AAC, rather than try to group people in relation to the condition causing the communication difficulty. This is one of the intended outcomes from this research project: seeking areas of consensus. I hope that identifying such similarities may help clinicians and services evaluate the AAC they issue and the support they provide to people who rely on AAC. Whether or not we can find any harmony within such a diverse group of individuals remains to be seen however. And whether this information can be suitably translated into a tool that professionals will engage with or that people who rely on AAC can be made aware of will be one of the greatest challenges of the project. Luckily, I have a supportive, passionate and energetic expert group with a broad range of experience between them: the stars who will shine a light on whatever I uncover during our research journey.

 

Beyond boundaries

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The Autumn equinox has just passed and I am “laden” with thoughts and reflections to nourish the start of a new phase in my research project. I was certainly “worn of heart, and weak of hand” after a hot, sunny and active summer and appealing though “nought but rest” sounded,  September is conference season and I had work to do. Conferences provide opportunities to share, learn and reflect. Plenty of both occurred during my trips to Sheffield and Leeds at the start of the month. Disrupt is the word that “sets me free” as I draw on my learning from the past few weeks and set an agenda for the new season.

The Design4Health conference in Sheffield brought together international designers and healthcare professionals to share their experiences of trying to draw these two antithetical worlds together. Keynote speakers from backgrounds as diverse as design, public service, creative arts and extreme sport (see Dilys Price, the worlds oldest female skydiver!) framed a conference that was both inspiring and challenging in equal measure. A team of “Double Agents” offered conference delegates encounters that question the boundaries that exist between roles (as researchers, healthcare professionals, carers)  and between design and health. They encouraged participants to look beyond these imagined borders and to re-frame the role of arts in health. With this in mind, I have been re-exploring the role of method in my research project. I have always felt that traditional research methods (as with traditional PPI methods) do not suit people who rely on AAC. I have been reading “After Method: Mess in Social sciences” by John Law which questions traditional understanding of research method. It encourages researchers to consider more broadly what can be considered as data and to think beyond dialogue. A fellow conference delegate signposted me to Creative Research Methods by Helen Kara (a much easier read) which provides some practical ways to approach qualitative data gathering. Design4Health disrupted some of the ideas and frameworks that I had in terms of research processes and methods and allowed me to look beyond the boundaries that traditionally encapsulate professional roles.

At the Communication Matters conference in Leeds, I had the privilege of presenting the evolution of my project’s Patient and Public Involvement (PPI) group with two of my experts, Jamie and Patrick. One of the things I have always valued about the CM conference is that it is inclusive – with delegates from clinical, educational and academic backgrounds as well as representatives from companies who produce and people who use AAC being in attendance. Speaker sessions are still grouped into ‘research’, ‘professional practice’ and ‘personal experience’ however, encouraging delegates to select sessions based on their personal affinity. I felt very proud that our presentation intersected the boundaries between all three. We had a receptive audience and received some really positive feedback. I believe the strength of our message lay in our collective ability to speak across traditional divides. I enjoyed hearing about the experiences of people who rely on AAC but was horrified by some of the more brutal realities of living with complex disability. Even the most competent, well-supported individuals have found themselves in very vulnerable and dangerous situations as a result of poor care or a lack of understanding. This is something we all have a responsibility to counter and the unifying message of the conference was that of improving the self-actualisation of people with complex disabilities. This will involve disrupting some of stereotypes commonly associated with disability by expanding discourse, roles and opportunities. I hope my research project will be part of this movement.

Longer autumnal evenings have provided a good opportunity to explore the books that the long and busy days of summer didn’t accommodate so well. This season I have started reading Daniel Kahnemen’s influential “Thinking Fast and Slow”. This book has definitely pushed me beyond my traditional bedtime reading boundaries but is a very rewarding read and has provided a new lens through which to view my experience as a doctoral researcher. In essence, following years of psychological investigation, Kahneman presents an argument for 2 cognitive systems concerned with thinking: system 1 which deals with instinctive and emotional thought and system 2 which is more deliberate and considered. This resonates with my experience of research. Years of professional practice had resulted in much of what I was doing in clinic being reactive and intuitive: system 1 was at work more often than not. Becoming a clinical researcher provides a daily dose of newness requiring far more reasoned thought. I have activated the habitually lazy system 2 to learn new skills and to embed new thought patterns in order to develop new instincts. Disruption is at play again – pushing against the boundaries of what I thought I was, what I thought I would do and what I thought I was capable of doing.

And so with the passing of summer, conferences, and phase one of my research I approach autumn with a freshness of mind and a slowness of thought. The conferences have fuelled me with new ideas about the methods I can employ during the project. I understand that my thinking needs to change pace to reflect the need to engage system 2 and create a new heuristic, or framework, from which to make decisions and form judgements. The disruption resulting from this seasonal transition has liberated me from some of the conventions associated with specific roles and methods. I intend to embrace the freedom.

 

Spreading the Word

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Image from pngimg.com used with license from Creative Commons 4.0 BY-NC

Research active healthcare organisations get better outcomes for patients. This is one of the main reasons that the National Institute for Health Research (NIHR) are investing in academic training for NHS clinicians. The fellowship programme that is funding my research (the Integrated Clinical Academic Pathway, or ICAP) is one such training pathway. It has the particular aim of supporting NHS allied health professionals (AHPs), nurses and midwives to develop research skills that they can then embed in their organisation. The mechanism by which this happens is specific to the role of the clinician and/or the infrastructure of their employing NHS organisation. There has been plenty written both here and elsewhere about the lack of clear clinical-academic career pathways within healthcare organisations, so how can an aspiring clinician-researcher change culture and create opportunities within their organisation? I have been fortunate enough to meet or hear about some people who have had success in doing just that; so it feels appropriate to share their experience in the hope that ‘spreading the word’ will help to inspire others to act and transform their horizon.

My professional body, the Royal College of Speech and Language Therapists (RCSLT), has had an active Research Champions network for the past few years. The support of this group was instrumental in my successful fellowship application, so it was a pleasure to meet other research champions again in July at the annual networking event. The aim of the research champions is “…to ensure that speech and language therapy is an evidence-based, research-active profession, bringing together research and clinical practice by working in partnership with the RCSLT and wider research networks.” The event was an opportunity to learn from each other’s experiences and to consider how we can continue to foster research as a profession both locally and nationally. We heard an inspiring story from Dr Heidi Siddle, a podiatrist in Leeds, about how the Leeds Teaching Hospitals NHS Trust developed a strategy for non-medical research careers – one of the first of its kind. Dr Sally Archer, a speech and language therapist (SLT), shared her experience of developing a research culture within her department at Guys and St Thomas’ NHS Trust by encouraging enquiry, evaluation and providing therapists with the opportunity to share their findings at conferences. The Clinical Academic SLTs group had the opportunity to meet again (some of us for the first time face-to-face), and formulated a plan for starting a clinical excellence network to support aspiring researcher-SLTs. It was encouraging to be in a room of clinicians from across the country with the shared ambition of embarking on a clinical-research career. We left the event having learned from, and being able to share, the ideas and experiences of those who have been part of creating a change within their organisations.

My employer is a community NHS trust that currently has very little in terms of research infrastructure. We have designs to increase our research activity however and have made some significant headway with developing both capacity for and interest in research over the past 12 months. One of the great advantages of the ICAP fellowship is the exposure to other organisations and networks that it has provided. One of my fellowship colleagues works for Solent NHS Trust in Hampshire. She made me aware of their fabulous Research Academy and conference event, which I was then able to share with my own Trust’s Research and Innovation forum. A colleague and I travelled to Southampton to attend their annual conference and we were delighted to meet the clinicians, patients and leaders who have developed the Academy from minimal research activity in 2011 to topping the NIHR league tables within 4 years. Seeing the types of research and development activities that the Academy boasts, and learning about their journey helped us to realise how we can grow and nurture research within our own organisation. The Solent Research Academy started with just a couple of research active clinicians and a vision. My colleague and I left with the hope (and belief) that we can host a similar event in the coming years to celebrate our own Trust’s successes.

The idea of building research cultures from deploying change agents within services was taken on by the East Midlands Clinical Research Network. They implemented a project using Research Envoys across two NHS Trusts in Leicestershire to “spread the research message”. Eight Research Envoys were proved training, time and mentorship to undertake projects within their clinical areas. The results included a increased awareness of how evidence based practice influences patient care, an increase in the amount research activity within the Trusts and altered career aspirations for all eight of the Envoys involved in the pilot. This is a great example of how a individuals, when provided with the right opportunities and support, can be catalysts for developing research cultures within and across organisations.

Embedding research into practice is not a job for one person. An individual can inspire others and ignite ideas but change will only really happen if there are a critical mass of people behind the movement and the requisite support from leaders. Creating a research culture within a profession, a trust or a healthcare network requires a team – of envoys, champions or simply research active clinicians. It’s been inspiring to see the results of their endeavours. Go forth and spread the word – you might just be able to create a change too.

 

Expert collaboration

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Image of expert group minutes, illustrated by Smizz

During the past month I have had cause to reflect on my motivation for carrying out this project, and to explore my personal philosophy behind my role as a speech and language therapist. The value of listening to people who rely on Alternative and Augmentative Communication (AAC) share their experiences is a central tenet of the project, and developing a tool that supports user-involvement in decision making and evaluation of AAC is one of the key intended outcomes. As a clinician, I believe that my input has greater impact when it is aligned with the priorities of the person I am working with, as opposed to prescribing therapy exercises or advice in their best interests. My underlying motivation as a clinical researcher is therefore to make service provision more patient-centred by exploring the mechanisms by which this can happen (i.e. learning from lived experience, and using assessment and evaluation tools that support engagement). At the start of my fellowship, I became embroiled in the guidelines, agendas and processes associated with carrying out research. I lost sight of the creativity and open-mindedness that conceived this research project and tried to fit my project and its participants into existing frameworks that don’t really accommodate the needs of people who rely on AAC. A fortuitously timed meeting with designers (Conference season) and the discovery of ‘Participatory Design’ (PD) has put me back on track. This is a reflective post about my experience, both theoretical and practical, of PD and how it is enlightening my approach to research.

Participatory design was born out of the social and civil rights movements of the 1960s when people started to demand an increased say in decision making. Its original application was concerned with the workplace and creating more conducive technology-abled systems by engaging workers in the design process. More recently it has been applied across a range of design problems from environments to products, and in a variety of contexts including community projects and healthcare. The basic premise of PD is to address power imbalance by sharing responsibility in decision making. Its underlying principle is that involving end-users in the design process will improve outcomes (i.e. successful use of the solution). The methods employed in PD are concerned with mutual learning. Designers learn about the context and problem from the people having the experience (the end-user), who in turn learn about the process and technical possibilities from the designers. End-user learning is based on having the experience of enacting, seeing, using and collaborating on the design solution. The ethical motivation for PD should be to support and enhance how people engage in shaping their world over time.

Discovering PD was an epiphanic moment; the principles, methods and ethical motivation resonate strongly with my personal philosophy, which underpins the Unspoken Voices Project. I used PD principles to improve the participation of my experts in advisory group meetings for the project. I described some of the methods I trialled  in a previous blogpost (Engaging the experts). Although I improved the interactions during that group, the methods were not always suitable due to the physical and cognitive difficulties experienced by some members. More recently, I used visual aids to support an expert meeting by focusing discussion around concepts that were presented in pictures and by using an artist (@Smizz) to illustrate the meeting (see title image).

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Some of the images used to facilitate discussion during a recent expert group meeting

PD has helped shift my thinking from using a traditional meeting format, relying on text resources and verbal discussion, to considering a framework method aimed at fostering inclusion. This has involved plenty of pre-planning and preparation of bespoke resources to facilitate engagement, but has enabled group members to participate more and consequently has enhanced mutual learning. Using Smizz’ graphics I was able to produce an audio-video of the minutes to which one of my group responded: “the audio minutes are wonderful… I mean I can read but I find reading hard and I am slow. It is a pity that other organisations or projects can’t adopt the audio approach.”

I have observed a change in emphasis within the expert group over the past year, as documented by my reflective blogs. I have progress from Asking the experts‘, to ‘Engaging the experts‘ and reached ‘Expert collaboration‘. The group has been a useful test-bed for employing Participatory Design principles as a mechanism for giving voice to the experts and addressing the power imbalance between professional/researcher and AAC user. This mirrors the shift in the language used by other groups concerned with the democratisation of research. INVOLVE,  an organisation which advises how to engage the public in research, has evolved from a focus on ‘involvement’ to promoting ‘co-production’. I have also discovered other researchers working with people who have communication difficulties are employing PD. There is a workshop focusing on this occurring at a Participatory Design conference this summer from which a methods guide will be produced detailing best practice for engaging people with communication difficulties in design.

Participatory Design offers an approach to engagement which correlates with the undying principles and philosophy that inform this project. Using PD principles to change the interaction dynamic within the expert group has significantly improved the ability of group members to participate. Through this foundation of mutual learning, I have learnt from expert feedback and been able to develop the process for engaging people who use AAC both within the group and in development materials for participant recruitment to the study. Group members report gaining a better understanding about the project and its potential value to people who use AAC. Many of the tools and mechanisms for employing PD are challenging for people who rely on AAC however as physical, cognitive and communication skills are inherent to enacting, using and collaborating during the design process. Further joint working with designers, artists and creative thinkers will help to overcome some of these methodological challenges and I look forward to reporting on these initiatives in future. Participatory design has also helped me to view other elements of my research project through a different lens. Whatever tool I ultimately develop to support decision making and evaluation in AAC will need to be dynamic, accessible, flexible and, most importantly, co-designed.

The section on participatory design (paragraph 2) was largely informed by the following text book: Routledge International Handbook of Participatory Design. (2013) Ed. Jesper Simonsen and Toni Robertson. Routledge: Oxon

 

 

 

 

 

Networks and networking

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The network: (from left to right) Amit Kulkarni, Dr Jackie McRae, Jo Wallinger, Anna Volkmer, Dr Lotte Meteyard, Dr Abi Roper (I am represented by the teleconference equipment in the front right corner!).

I recall learning about ‘networks’ during my Masters degree in clinical leadership; and not really getting it. As a clinician, I was part of special interest groups, and attended meetings concerned with sharing learning and information, which would then inform my clinical practice. With regards to broader networks, I couldn’t really understand how people outside my organisation or specialism would be able to help me within my role as a speech and language therapist. And I have never been very keen on the small-talk that I associated with ‘networking’ at conferences, meetings or social events.  Oh, how little did I know! As a distance learning student, based 200 miles from my university, I realised early on in my academic journey that I would need support that I couldn’t access in my local, rural environment. I started scouting about for sources of support on the internet and I found other clinical academics were discussing their research, clinical interests and wider concerns via social media. I wanted to join in but I wasn’t really sure how to start. I lurked, liked, commented and finally found the confidence to join in Tweetchats with ResNetSLT. Inspired by the people I was connecting with in my new virtual-networks, I became more engaged on Twitter and started writing this blog. I was delighted when my blog post about clinical academic careers ignited an impassioned conversation on Twitter, and was honoured to be at the inception of @ClinAcSLT – a Twitter network for speech and language therapists (SLTs) who want to pursue a clinical academic career. At the beginning of April, a few SLTs who had been part of that twitter conversation, and who are engaged some form of clinical-academic activity, met at the Royal College of Speech and Language Therapists (RCSLT) in London to discuss how this new network could address some of the issues and concerns raised during the Twitter chat. Virtual networking became real (well, almost – I dialled in to the meeting via teleconference).

The @ClinAcSLT meeting consisted of SLTs with a variety of clinical and academic experience. As a group, we were keen that any new network should complement those already in existence. The RCSLT Research Champions network  (RCSLT members only) represents a range of SLTs from those who are research-interested clinicians to professors with established research portfolios. The aim of this network is to help SLTs find training and to provide a mechanism for cascading research information from the RCSLT research centre to its members. ResNetSLT was established by Dr Hazel Roddam and is an online forum offering free access to research news, viewpoints and resources. A newly formed action group runs a monthly Twitter discussion forum for exchange of perspectives between individuals at different stages of their career, with the aim of supporting clinicians in evidence-based practice. The Twitter group has engaged with an international audience and with clinicians from a range disciplines. Fellow Blogger, SLT and NIHR research fellow Anna Volkmer talked about local, university-based networks, such as the Research Generator Workshop at University College London, that aim to support clinicians who have ideas for research projects and who want to identify next-steps.

As a group we identified some of the funding bodies and pathways that can enable clinicians to engage in research such as the NIHR, MRC and charities such as the Stroke Association. Representation can be an issue within these organisations however. The NIHR does not yet have an SLT advocate who could support SLTs to access their clinical academic pathways. Most of the large research-funders are health-focused which can make it difficult for SLTs working with children or in education to access grants. Despite some progress being made in the development of training pathways for allied health professionals there are still very few posts that span academic and health organisations, i.e. truly clinical-academic roles. We identified that a Clinical Academic CEN (clinical excellence network, supported by the RCSLT) could help to address some of these issues by sharing the collective wisdom and achievements of existing clinical academics with a view to developing an infrastructure that will help others in future. Regular meetings could provide a forum for SLTs to explore funding pathways, provide face to face mentoring and support individuals to develop research ideas. The network could also be part of a strategic drive to formalise a clinical academic career structure for SLTs. There are networks developing in other countries, such as #DrSLP in Australia, who are encountering (and trying to counter) the same hurdles as us. We discussed how we could reach out to these networks to learn from one another.

The main action following the meeting was to share the discussion and Clinical Academic CEN plans via our networks. We aim to present @ClinAcSLT at the RCSLT Research Champions meeting in July, and will use the blogosphere to link our collective audiences to this post and other related resources. We will use Twitter to get some feedback on our final proposal and use social media to collect stories from people at various stages of their clinical-academic careers so we can learn from their experiences.

If you are a network-sceptic, as I was, I hope this post will encourage you to reach out. Tweet, blog, connect. The power of networks is empowering. They provide access to expertise and experience regardless of your geographical location or the stage of your journey. They connect you with like-minded people, no matter what your professional and clinical backgrounds are. And the collective force of a network can enable change and progress that is beyond the ability of an individual. If you need somewhere to start – try some of the links in this post. I’ll see you on the web.

@abracabadger 

@abcdlabReading

@volkmer_anna

https://annavolkmersbigphdadventure.wordpress.com

@daisy_project 

@JoWallinger

@AmitSaLT

@Katie_Chadd

@KatieMonnelly 

@HazelRoddam1

@ClinAcSLT

@ReSNetSLT

 

 

Alien planets and new horizons

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Image from Pixabay: “alien planet”

I was planning this blog post under the working title: “One year in”. A descriptive label for a reflective post about the first year of my research fellowship. I used various subtitles to help me plan the content, one of which was ‘new horizons’. A search for pictures using the phrase ‘new horizons’ is how I found the picture at the top of the post. Landing on an ‘Alien planet’ is, in many ways, a metaphor for my experience of entering the realm clinical-academia. Despite impeccable attention to detail when developing my research plan, applying for and securing NIHR funding, and planning every aspect of my fellowship training to the nth degree, I have been surprised by how much of the past year has been unfamiliar and unexpected. I was an NHS clinician for many years. Experienced and practical, I was used to working with a clear set of expectations and completing specific tasks. The move to academia has been a journey of navigating alien territory, learning new skills, and discovering new perspectives.

I thought I had carried out a lot of background work during my clinical academic internship in preparation for applying for and commencing the fellowship. During the the past year I have discovered that my plan was rather two-dimensional; a road map with a starting point, a destination and some simple signposting along the way. I am now discovering that the research landscape is contoured. I can’t always see the end point and there are some interesting (and some terrifying) features along the route that I had’t anticipated in advance. I have had to develop a more dynamic and nuanced model for navigation in order to reach the same destination. A systematic review, as described in a brief paragraph of the fellowship application, seemed like a quite straightforward task at first. It has become a two-headed nemesis, far bigger than anticipated in size and complexity. Once conquered, the review (or reviews) will provide a deeper and more solid understanding of the existing knowledge about user perspectives and patient reported outcomes in alternative and augmentative communication (AAC). The project was developed on the basis of current best practice in AAC combined with a motivation to strengthen the patient voice in service evaluation and development. This last year of reading, learning and discussing (with peers, mentors, supervisors and experts) has led to the development of a new and more detailed theoretical framework based on person-centredness, participatory design and constructs of disability. Exploring these alternative theories and frameworks has enabled me to develop a deeper and clearer understanding of the background to the project. The influence of the expert advisory group has also exceeded that which I had anticipated but has added both strength and integrity to the project. I am developing really valuable relationships with the experts which are challenging the precepts I had of my role as clinician and of researcher. The landscape, support and guidance for navigating my research environment has altered but the changes will add strength to the research project and to my development as a clinical-academic researcher.

Despite having a speech and language therapist’s penchant for stationary, admin has never been my strong suit. Buying a new notebook is no substitute for organisation and this is one of the skills I have had to pay some attention to during the past year. Academia is not just about reading and learning, but about organising papers read into topics, folders and subfolders where they will be readily accessible for use in paper-writing, grant-writing, teaching and learning. Days are not timetabled into clinical sessions and appointments but need to be structured into units of focus: emails, forms, meetings, reading, writing etc. Training is not about attending events and listening to experts impart knowledge but about discussion, challenging opinion, reflection and building networks with people who will help move knowledge forward. Having space to think is a newly-discovered luxury, but thoughts also need organising into frameworks, theories, arguments, backgrounds and further questions; all of which require time, and structure. And then there are the forms. So many forms. Each of which requires a slightly different approach to completion with slightly different requirements for grammar (pronouns, tense), spelling (US/UK) and form (formal/informal). Attention to detail is another area for development. I’m glad I have another four years to work on it. The fellowship demands that I read, think and network broadly while maintaining focus on my research questions and demonstrate due administrative diligence.

I have really appreciated opportunities to meet academics and clinicians with alternative professional backgrounds and therefore perspectives. Networking had never really felt like a valuable activity to undertake during my clinical role where my work environment was fairly monochrome –  a single department of single NHS organisation in a single geographical location  with a single clinical specialism. During the past year I have been able to view a range of new horizons. I can see the greater context for this research project and I can see where networks and collaborations will strengthen the project (and it’s impact) and where the project will support and enhance the work of others. This new perspective has also given me license to slow down, adapt the plan when necessary and to understand more about the opportunities that will add value to my training, the project or health research in general.

I have landed on an alien planet where the terrain is unfamiliar and, at times, unpredictable. I am adapting to this new habitat however. I have developed some new skills concerned with organising my work, my learning and my thinking. These skills are helping me to establish deeper foundations and the project has the potential to more exciting, rewarding and ambitious as a result. The horizon has altered too. I am meeting new people, looking in different directions and becoming more confident about my place (and the place of my research) in this unfamiliar environment. I think I will acclimatise well. Just give me another year, or four!